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Sharon's Nook Living with Lyme News About Us

Collecting data is the first step towards wisdom; sharing data is the first step towards community.


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Sharon's Bio

For more than a decade, I suffered from numerous mysterious or rare maladies.  I saw internists, gastroenterologists, endocrinologists, chiropractors, orthopedists, neurologists, neurosurgeons, pyschiatrists, phychologists, dermatologists, urologists, osteopaths, and then three rheumatologists.  Some of them offered relief for my symptoms, but no one offered a cause. 
In early 2009, I became almost bedridden with back and knee pain.  Through the grace of God, four months later, I found the RIGHT doctor who diagnosed me with late stage chronic Lyme disease.  I began treatment on October 16, 2009, one day after my dad's 80th birthday. 
This is my perspective of my Lyme journey. 


Lyme Disease Symptom and Treatment Tracking Survey

Below is a short survey for Lyme patients created by Chris Griffith who was in one of our Empower Yourself to Heal workshops. He explains this very useful digital tool he wants to develop to help us track our treatment, diet, exercise, symptoms, improvements, etc.
Please take the time to help all of us out and fill out the survey and forward it on to other Lyme patients you know whether they are in remission or not. Multiple family members is fine too. 
Thanks,
Joy

I am a designer conducting a user study to learn more about how people could benefit from a service to help manage their Lyme Disease and/or co-infections. If you have Lyme Disease, please consider taking the survey (link posted below) which is less than 20 questions long, and pass it on to your friends and family. If you do not have Lyme Disease, please consider simply passing this on to your friends and family. The more results I have, the better I will be able to design a service that will provide a great experience. Thank you for your help! The survey can be accessed by the following link:

http://chrisgmedia.net/lyme

Background
My name is Christian Griffith and I am a professional user experience and interface designer. In August 2013, I was diagnosed with Lyme Disease after seeing many doctors over a span of two years. Initially, my diagnosis was a relief, but I soon came to the realization that I was in for the long haul.
During the course of my treatment, I have attempted to keep track of the levels of my symptoms using a number of methods - pen and paper, spreadsheets, and even an iPhone app - but each of these methods failed to deliver the insights I wanted and needed, were not easy to use, or became a chore. With my experience and skills, I would like to design a method to not only help myself, but to help others.


The Idea
The goal of this service is to provide insights and assistance in the treatment of Lyme Disease while fitting into it's users' lives - not becoming another thing that we have to do.
The idea is currently the "discover" phase where I will list all of the user needs. I have a number of hypotheses about how people may use a service like these, but it only based on my personal experience. To design a truly great experience, I need to learn more about my users, and this is where I need your help.


The Study
I have created a short user survey (less than 20 questions). If you have, or have had, Lyme Disease, I would truly appreciate receiving your feedback, insight, and opinions. If you do not have Lyme Disease, but have been touched by Lyme through a loved one, please pass this message on through e-mail or share the link on your social networks of choice. The can be accessed by the following link:

http://chrisgmedia.net/lyme

Thank you so much for taking the time to consider filling out the survey and/or passing it on to your loved ones.

Sincerely,
Christian Griffith
Designer & Front-End Developer
www.chrisgmedia.net

E: chris@chrisgmedia.net

Send Sharon a response


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Lyme resources

www.galaxydx.com
www.beatingbartonella.com
www.whatislyme.com
web.ncsu.edu
www.sharonlivingwithlyme.com
www.tmgmd.com
www.betterhealthguy.com
www.lymedisease.org
www.wildcondor.com
www.ilads.org
Overcoming Lyme
www.ladyoflyme.com/
www.lymenet.org
My Blind Spot Journey
www.lymediseaseassociation.org
www.publichealthalert.org
www.lymeinfo.net
www.lymefriends.org
www.lymepedia.org
www.lymechick.com
www.lymediseaseaudio.com/
www.underourskin.com
www.cheryllyme.blogspot.com/
www.joethetick.com
www.lymepa.org
www.lymetap.org
Lyme Links
www.butyoudontlooksick.com
slippiingthroughthecracks.blogspot.com

Lyme quote

Think of a fine painter attempting to capture an inner vision, beginning with one corner of the canvas, painting what he thinks should be there, not quite pulling it off, covering it over with white paint, and trying again, each time finding out what his painting isn't, until he finally finds out what it is. And when you finally do find out what one corner of your vision is, you're off running.

Anne Lamott,



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