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Sharon's Nook Living with Lyme News About Us

Collecting data is the first step towards wisdom; sharing data is the first step towards community.


This page chronicles my journey through Late Stage Chronic Lyme Disease.  I was diagnosed many, many years after the initial onset, leaving me with a very long list of symptoms that I hope will eventually dissipate or even hopefully disappear as my treatment progresses. 


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Sharon's Bio

For more than a decade, I suffered from numerous mysterious or rare maladies.  I saw internists, gastroenterologists, endocrinologists, chiropractors, orthopedists, neurologists, neurosurgeons, pyschiatrists, phychologists, dermatologists, urologists, osteopaths, and then three rheumatologists.  Some of them offered relief for my symptoms, but no one offered a cause. 
In early 2009, I became almost bedridden with back and knee pain.  Through the grace of God, four months later, I found the RIGHT doctor who diagnosed me with late stage chronic Lyme disease.  I began treatment on October 16, 2009, one day after my dad's 80th birthday. 
This is my perspective of my Lyme journey. 

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Helpful Books about Lyme Diesase
April 10th - - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Favorite books about Lyme When I was first diagnosed with Lyme, I couldn’t read a book. I couldn’t even read a chapter of a book. And if I read the chapter, my retention was zero. Rea... click here to read more


The Perfect Care Package for Fellow Lymies
April 9th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Create the perfect care package for your fellow Lymies. My care package is going to be pretty big . . . and it might not exactly come in a box . . . An LLMD who knows how to treat your in... click here to read more


Someone Just Starting Treatment
I received this email today from someone who is just beginning the treatment journey: “Having just started this thing, I am already depressed and zonkered by the meds. I have done nothing but sleep this first week on the ABX. I am "dropping" a lot...I did this afternoon, and no one in the house heard me call, which sort o... click here to read more


Snapshot of Living with Lyme
April 7th – I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth A snapshot of living with my disease. Getting out of bed #1 - By the time I got to my Lyme Literate Medical Doctor, I was in rough shape. It took me 35 minutes from the moment I awakened u... click here to read more


Common Misdiagnoses of Lyme
I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Topic: How long does it take to get a Lyme diagnosis? What are other common misdiagnoses? For me, it took 29 years to get the correct diagnosis. I went through some years of being in good health temper... click here to read more


What I am Inspired By
April 5th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease for the month of April. #HAWMC @wegohealth Topic: What am I thankful for / excited about / inspired by. When I was initially diagnosed in 2009, Facebook was not very common, and certainly didn’t have all the su... click here to read more


Helpful Labs and Websites
April 4th – List of resources for anyone newly diagnosed and comments on labs to use for accurate testing. First, the labs that I recommend. Please note I am not a physician and can only tell you my experience with the following labs from a patient’s perspective: Igenex.com – San Diego, CA – they test all the DN... click here to read more


Describe a Conversation with Your Physician
April 3rd – #HAWMC, @wegohealth Describe a conversation with your physician. Conversation with my doctor last Thursday, March 21st. “So, your protomyzoa rheumatica is now negative, but you still have a variant present,” he said. “Damn you!” I blurted out. I just KNEW I was in remission. I had two negativ... click here to read more


Why I Write About My Health
As part of a task to get myself writing more regularly, I have accepted The Health Activtist Writer’s Month Challenge #HAWMC. Some of the prompts they have provided I will use. Some, I will improvise upon. I also think this will help me with complete more sections of my book Lyme Savvy. This is probably the easiest ... click here to read more


5 Things I Want Everyone to Know About Lyme
April 2nd – As part of a task to get myself writing more regularly, I have accepted The Health Activist Writer’s Month Challenge #HAWMC. What are five things I want them to know about my condition? 1. Lyme is called the masquerader because it imitates so many other diseases. It attacks the weakest part of a p... click here to read more


Round 3
The title of this essay was supposed to be “REMISSION.” Yep, I had my 3:30 Lyme doctor appointment where I found out the results of my third blood test for the Protomyzoa Rheumatica. Yep, one test away from REMISSION. Good news: the Protomyzoa Rheumatica is gone. Bad news: I now have a variant of the PR. Anoth... click here to read more


Virginia Passes Lyme Law
The VA Lyme Bill just passed in Richmond by a Vote of 56 yes and 40 no. This is now the LAW in the state of Virginia!!!!!!!!!!!!!! A. Every licensee or his in-office designee who orders a laboratory test for the presence of Lyme disease shall provide to the patient or his legal representative the following written in... click here to read more


Toys on the Pillow
Toys on the Pillow I took Reagan, our remaining Cavalier, to the office today - six walks in 4 hours . . . he likes to walk when he is there. I figured it was good for me to be up and moving. Most of the walks were our usual routine, once around the buildings, along the tree line, up and down the three parking islands.... click here to read more


Riley - A Day Later
It has been just a little over 24 hours since our beloved dog’s death. I feel a bit of an obligation to update everyone for a few reasons: 1. You have lifted our family in prayer so high and so strongly that I want you to know it is helping. Prayer makes a difference for me. And I thank you for this gift. 2. ... click here to read more


Spirit and Spunk
Spirit and Spunk Riley Rainey, February 3, 2013 Earlier today, our beloved Cavalier King Charles Spaniel, Riley escaped from the invisible fence again and was hit by a car and killed. The driver did not stop. Fortunately, a Neighbor (Cindy Elkin) stopped, wrapped Riley in a towel and brought him into her garage and cal... click here to read more

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