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Sharon's Nook Living with Lyme News About Us

Collecting data is the first step towards wisdom; sharing data is the first step towards community.


This page chronicles my journey through Late Stage Chronic Lyme Disease.  I was diagnosed many, many years after the initial onset, leaving me with a very long list of symptoms that I hope will eventually dissipate or even hopefully disappear as my treatment progresses. 


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Sharon's Bio

For more than a decade, I suffered from numerous mysterious or rare maladies.  I saw internists, gastroenterologists, endocrinologists, chiropractors, orthopedists, neurologists, neurosurgeons, pyschiatrists, phychologists, dermatologists, urologists, osteopaths, and then three rheumatologists.  Some of them offered relief for my symptoms, but no one offered a cause. 
In early 2009, I became almost bedridden with back and knee pain.  Through the grace of God, four months later, I found the RIGHT doctor who diagnosed me with late stage chronic Lyme disease.  I began treatment on October 16, 2009, one day after my dad's 80th birthday. 
This is my perspective of my Lyme journey. 

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First Day of Diagnosis
April 25th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth If you could go back in time and talk to yourself on the day of diagnosis, what would you say? The day I was diagnosed correctly, I spent two hours with Dr. M. I had filled out a 22 page fo... click here to read more


Giving Me My Dreams Back
April 24th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Write about something I taught my physician or my physician taught me. I sent this note over a year ago to my physician, but thought it was a good marker for how much healing can happen. ... click here to read more


Week in Review
April 22nd - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Write a poem about Lyme Disease – I wrote this poem about two years ago. Week in Review Monday Four-week anniversary of nephew’s suicide; traveling through each hour as I did that day.... click here to read more


How a Speck Changed My Life Forever
April 23rd - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Today, I am posting something from famous novelist Amy Tan. She is also a Lyme warrior. Taken from AmyTan.net How a speck changed my life forever I used to brag that I never got sick. I... click here to read more


The Roundabout Way
April 21st - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth I just re-read my very first blog posting in 2009 about my journey to get to the Lyme Disease Diagnosis. I thought it was worth reposting . . . . The Initial Few Weeks Note from Sharon... click here to read more


What I Don't Have
April 20th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth What I Don’t Have I woke up this morning frustrated because the bottom of my feet still hurt when I walk. That’s an old symptom for me; one I had when I had Bartonella; that and itchy ear ... click here to read more


Resting
April 19th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Resting Day before yesterday, I attended my first business-networking event in more than three years. I went to business grand opening for someone I really like. I knew some people there whom ... click here to read more


10 Things I Need or Want the Most
April 18th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth 10 Things I Love or Need the Most 1. End of the bed foot warmer 2. Brush to do dry brushing all over my skin 3. Monthly LLMD appts – and a physician who makes me laugh and maintain hope 4. ... click here to read more


The Non-Believers
April 17th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth The Non-Believers I believe that Lyme disease (and its co-infections) will be the next big epidemic in US History; similar to the AIDS epidemic. I believe that up to 25% of our general po... click here to read more


Tragedy and Stress
I had my blog posting already set up for today, but given the tragedy at yesterday’s Boston Marathon, I felt it important to acknowledge the event and to link it albeit in a thin way to Lyme disease. My LLMD has noticed that most of his patients are highly empathic individuals. We are FEELERS. Our intuition is usually ... click here to read more


Instead
Don’t tell me - But you don’t look sick. - But I thought you rested yesterday. - Oh good! Now that you are better you can go back to the way you used to live/work! - Maybe you should see a psychiatrist. - But you looked fine yesterday. - I already told you this. - Get a grip; there is nothing wrong with you. - S... click here to read more


Memory and Energy
April 15th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Memory and Energy For most Lyme patients, memory and energy are two things they wish they had more of. The memory issues are usually short term memory. We just can’t remember things. At a ... click here to read more


Willing to Go to Any Lengths
April 14th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Willing to Go to Any Lengths. When I started treatment, my physician warned me that my life needed to change. It had already changed so much I didn’t really know what he meant by that state... click here to read more


Different Symptoms for Each Patient
April 13th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Lyme disease affects each patient differently because it attacks the weakest part of each patient’s body. For example: Our son, Stephen, suffered from a low-grade fever and recurrent p... click here to read more


Playlist for Lymies
April 12th – - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Create a playlist for Lymies . . .I created this from actual songs I have on my laptop . . I found it a bit humorous how many would actually fit for those of us with Lyme disease. Tomorr... click here to read more

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