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Sharon's Nook Living with Lyme News About Us

Collecting data is the first step towards wisdom; sharing data is the first step towards community.


This page chronicles my journey through Late Stage Chronic Lyme Disease.  I was diagnosed many, many years after the initial onset, leaving me with a very long list of symptoms that I hope will eventually dissipate or even hopefully disappear as my treatment progresses. 


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Sharon's Bio

For more than a decade, I suffered from numerous mysterious or rare maladies.  I saw internists, gastroenterologists, endocrinologists, chiropractors, orthopedists, neurologists, neurosurgeons, pyschiatrists, phychologists, dermatologists, urologists, osteopaths, and then three rheumatologists.  Some of them offered relief for my symptoms, but no one offered a cause. 
In early 2009, I became almost bedridden with back and knee pain.  Through the grace of God, four months later, I found the RIGHT doctor who diagnosed me with late stage chronic Lyme disease.  I began treatment on October 16, 2009, one day after my dad's 80th birthday. 
This is my perspective of my Lyme journey. 

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Aunt Betty
May 16 – May is Lyme Disease Awareness Month Aunt Betty On June 5, 2002, my dad called at 11:30 pm. His baby sister, Aunt Betty, had died earlier that afternoon of a pulmonary embolism. She was 57 years old. She died of complications from Lyme Disease. Exactly two years prior, Aunt Betty went to her physician ... click here to read more


Similarities Among Patients
Day 15 – May is Lyme Disease Awareness Month Similarities Among Patients Most Lyme patients aren’t dealing with JUST Lyme disease. Every patient is different, but we have a few similarities. 1. Adrenal fatigue – When I was tested, I found out that my cortisol levels were constantly high; my body was always in ... click here to read more


Fatigue or Diarrhea?
Day 14 – May is Lyme Disease Awareness Month This is one of those more “intimate” posts. I haven’t written in a few days because I have been battling with each of these symptoms. I was supposed to change my meds to a different timing and I had to go off the antibiotics (abx) for a week before restarting at a heavier... click here to read more


Which Are You More Likely to Get?
Day 8 – May is Lyme Disease Awareness Month Lyme disease is transmitted through deer ticks. Bartonella can be transmitted: - in utero, - through ticks, - through mosquitoes, - through fleas, - through biting flies and - cat scratches. Bartonella has been found in up to 80% of feral cats and 50% of indoor/ou... click here to read more


Bizarre Symptoms
Day 7 - May is Lyme Disease Awareness Month Some of the weirder symptoms we Lyme patients experience . .. if you have never had Lyme or a co-infection of Lyme, you will think these symptoms are a bit far fetched. If you do have Lyme or a co-infection, you will think, “WOW! I’m not crazy! I’m not alone . . .” I don... click here to read more


Does Your Pet Have Lyme?
Day 6 - May is Lime Disease Awareness Month If your animal has tested positive for Lyme, the family should be tested for lyme and its co-infections. The ticks and fleas don’t care who they feed off of. It IS possible for cats and dogs to get co-infections. We had a cat test positive for Bartonella and Erlichiosis.... click here to read more


Finding an LLMD
Day 5 – May is Lyme Disease Awareness Month If you have Lyme disease or a co-infection of Lyme, you will probably receive the most effective treatment from a Lyme Literate Medical Doctor (LLMD). You should also check out the www.ilads.org website for more information. When searching for an LLMD, you can go to www.ly... click here to read more


Specialty Labs for Testing
Day 3 – May is Lyme Disease Awareness Month When a general physician tests a patient for Lyme, s/he runs a typical ELISA or Western Blot test. The ELISA or Western Blot also does not test all of the DNA bands for signs of infection. Therefore, it is not a test that Lyme Literate physicians use. If the Elisa or West... click here to read more


Infections and Co-infections
Day 2 – Infections and Co-infections When people say they have Lyme disease, they may have Lyme, but they more than likely also have one or more of the co-infections of Lyme disease. These include: Bartonella, Babesia, Erlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, Qfever, Colorado Tick Fever. In my family, non... click here to read more


Recap of the Month
April 30th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Write a recap of my experience. What have I learned? I wasn’t sure I would be able to write about Lyme disease for 30 days in a row. I’m glad I did this. I know more than I realized I kn... click here to read more


You Are Invited to our House
You are cordially invited to attend the Rainey Family Lyme Protest Rally BBQ Saturday, May 25th from 5:30 – 9:30 pm at our home 1086 Pensive Lane, Great Falls, VA 22066 If your first name begins with: A-G – please bring an appetizer or salad H-M – please bring a dessert N-O – please bring a non-alcoholic beverag... click here to read more


Lyme Savvy
April 29th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Some of you that I have been writing a book on Lyme disease. I am writing it with my physician! We expect it to be published in October of this year. The title is Lyme Savvy: New Approaches ... click here to read more


What I have Learned That Surprised Me the Most
April 28th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth What have I learned about being a patient that surprised me the most? I was flabbergasted as I went through the initial process of getting the lyme diagnosis and how many medical professio... click here to read more


Role of Food in Healing - Part 2
April 27th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth Role of Food in Healing – Part 2 There is a saying in Alcoholics Anonymous that is a semi-joke when newcomers enter and worry about trying not to drink. The ones with more sobriety will say... click here to read more


Role of Food in Healing - Part 1
April 26th - I have accepted The Health Activist Writer’s Month Challenge to write daily about my disease. #HAWMC @wegohealth The Role of Food in Healing from Lyme Disease – Part 1: Green Smoothies At 10 pm last night, I was loading my Vitamix with spinach, blueberries, strawberries, avocado, and coconut water. I ... click here to read more

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