This page chronicles my journey through Late Stage Chronic Lyme Disease. I was diagnosed many, many years after the initial onset, leaving me with a very long list of symptoms that I hope will eventually dissipate or even hopefully disappear as my treatment progresses.
Sharon's Bio
For more than a decade, I suffered from numerous mysterious or rare maladies. I saw internists, gastroenterologists, endocrinologists, chiropractors, orthopedists, neurologists, neurosurgeons, pyschiatrists, phychologists, dermatologists, urologists, osteopaths, and then three rheumatologists. Some of them offered relief for my symptoms, but no one offered a cause.
In early 2009, I became almost bedridden with back and knee pain. Through the grace of God, four months later, I found the RIGHT doctor who diagnosed me with late stage chronic Lyme disease. I began treatment on October 16, 2009, one day after my dad's 80th birthday.
This is my perspective of my Lyme journey.
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It Is What it Is
6 am
I start up Stephen’s car – there is ICE everywhere . . . ICE? Yep.
Jeff can’t find his set of car keys. We spend 20 minutes trying to find them. He parked behind Stephen. I start up my car thinking we can move them around, who knows.
6:15
Jeff finds his keys, starts the car, Stephen can pull out of the dri...
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Sharon's Annual Christmas Letter
Dear Friends and Family,
Once again, we were graced this past year with many gifts from our family and friends, exemplifying the amazing love and generosity of those who surround us. Jeff and I could not have made it through this y...
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Lyme Documentary Needs Our Help to Win Oscar
UNDER OUR SKIN has been selected for the Academy Awards "short list" for best documentary feature!
The selection of Under Our Skin for the 2009 Oscars semifinals is fantastic news for the Lyme patient community. Making it into the top 5 finalists will provide enormous exposure to all Americans of the plight of victi...
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Amy Tan and Stephen
While on vacation over Thanksgiving, I read Amy Tan’s The Opposite of Fate; Memories of a Writing Life. I didn’t read her best seller, The Joy Luck Club. But I knew Tan had Lyme disease and I wanted to learn from her. I wanted to read her experience, strength and hope. Her Lyme story didn’t surface until the final chapt...
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Cold Feet
Today was the first time that I looked at my feet and felt as though they were somehow separate from my body. It’s a very strange sense. Each morning, in the shower, I turn the water a bit warmer and let it run on my feet for a few minutes to help them warm up a bit.
Peripheral neuropathy is a side effect of Lyme Dise...
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I've Already Been Tested for That
"I’ve already been tested for that."
I have heard this statement almost as many times as I have suggested to individuals that they be PROPERLY tested for Lyme disease throughout the past two months since my own diagnosis.
I feel like Lucy from the Peanuts cartoon, standing with my arms outstretched, yelling to the sky...
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Patient Empowerment
Today, my mom came with me to my appointment with the physician treating my Lyme disease. Mom is a stroke survivor; it is not easy for her to get around. I explained to Dr. M that I will probably bring a different family member each time because he (Dr. M) has become a star in my clan. Everyone wants to meet the man who ...
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Bacteria, Lyme, Research Advancement
My uncle found this (see bottom of email for link to original posting). I like the clarity in these words . .
Science & Tech
Bacterial antibiotic resistance genes discovered
By Aleena Lakhanpal
Issue date: 11/5/09
Antibacterial soap, hand sanitizer and antibiotics are all substances that we use in an attempt to k...
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Isn't it all the Same?
Shopping today in the local Giant supermarket. . . . in the checkout line . . . .
"Did you find everything you were looking for?"
"Actually, no. Do you have a Gluten-free section?"
"Oh, yes! Aisle 25."
"Yes, I saw that. Your organic food aisle. But do you have a gluten free section? I didn't see much...
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How a Speck Changed My Life Forever by Amy Tan
Taken from AmyTan.net
SLyme Disease
By: Amy Tan
How a speck changed my life forever
I used to brag that I never got sick. I rarely came down with colds or the flu. I had health insurance for catastrophic illness and only used it once, for surgical repair of a broken leg, the result of heli-skiing, the sport of...
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