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Sharon's Nook Living with Lyme News About Us

Collecting data is the first step towards wisdom; sharing data is the first step towards community.

This page chronicles my journey through Late Stage Chronic Lyme Disease.  I was diagnosed many, many years after the initial onset, leaving me with a very long list of symptoms that I hope will eventually dissipate or even hopefully disappear as my treatment progresses. 

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Sharon's Bio

For more than a decade, I suffered from numerous mysterious or rare maladies.  I saw internists, gastroenterologists, endocrinologists, chiropractors, orthopedists, neurologists, neurosurgeons, pyschiatrists, phychologists, dermatologists, urologists, osteopaths, and then three rheumatologists.  Some of them offered relief for my symptoms, but no one offered a cause. 
In early 2009, I became almost bedridden with back and knee pain.  Through the grace of God, four months later, I found the RIGHT doctor who diagnosed me with late stage chronic Lyme disease.  I began treatment on October 16, 2009, one day after my dad's 80th birthday. 
This is my perspective of my Lyme journey. 

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While sitting idly at the hair salon today, trying to take the grey out of my hair, I was enjoying reading my copy of The Art of Fear. I was delighting in the fact that on January 2nd, I was sticking to my goal of reading for at least a half hour daily. And then SHE sat next to me; old enough to know better, but not gi... click here to read more

15 Books in 2013
Usually, I have a pretty good list of books that I have read over the past year, and usually, filled with comments about what I thought about each one. This year, not so much. I was spending a lot of my time WRITING my Lyme Savvy book, so I was doing a lot of research and reading articles, parts of books, etc. Here is ... click here to read more

One of my goals is to just write and post (with no editing). Here goes . . . I planned to write a really amazing, insightful, uplifting blog post today to start the new year. I read everyone else’s as they came through the email and on Facebook. I sat here instead and sulked. I don’t want to do anything today. I don... click here to read more

Sharon's Annual Christmas Letter
Dear Friends and Family, December 1, 2013 I am starting this letter literally within the hour after handing in my Lyme Savvy manuscript to my co-author for his edits and additions. This book has been on my mind for more than two years, but I wasn’t able to really work on it until the past six months or so... click here to read more

De-Stressing Time
During the past two weeks, I have been inundated with calls, emails, texts, and everything else, primarily from Lymies in crisis. Feeling heavy duty anxiety, stress, frustration, fear, you name it. I KNOW most of this is holiday related, end of the year related . . . just a moment in time when we examine what is, what ... click here to read more

Healing to Hurting in 2 Weeks
Healing to Hurting in 2 Weeks It all happened so fluidly that I almost didn’t recognize the pattern until I awakened yesterday morning from sleeping 11.5 hours through the night. The past few weeks have been tension filled, stressful days in anticipation of the year’s end, the holidays, and trying to get our Lyme Sa... click here to read more

Bartonella Webinar Tomorrow
IF you can't see the jpg, just let me know and I can email it to you.... click here to read more

Webinar on Bartonella, Lyme Disease with Correct Link
This is a GREAT opportunity to learn more about the co-infections of Lyme Disease. I'm signed up! Who else wants to learn more about Bartonella? Bartonellosis: A cause of vascular Inflammation and Chronic Disease For Patients Join us for a webinar on Oct 29, 2013 at 6:00 PM EDT. Register now! https://attendee.... click here to read more

Webinar on Bartonella October 9th
Bartonella Webinars: Discussing Biology of Bartonella, Human Case Series Published in J EID (May 2012), and long term Clinical Experience In May 2012, a team of veterinary and human medical scientists published in the CDC’s Journal , Emerging Infectious Diseases (EID May 2012), the largest ever case series of Bartonella sp... click here to read more

May Day Rally Speech
Day 25 – May is Lyme Disease Awareness Month. We had a rally at Freedom Plaza in Washington DC today. I was one of the speakers. My assigned topic was "Green Smoothies." When I sat down to write this speech, I put on a work out shirt that my Aunt Betty wore in her last months while she underwent treatment for Lyme D... click here to read more

The Herxheimer Reaction
May 22nd, 2013 – May is Lyme Disease Awareness Month What is a Herx? The Jarisch-Herxheimer Reaction, or more commonly known as ”herx,” is a detoxification reaction your body has from die off of bacteria. It is the worsening of symptoms before getting better. As the body detoxifies, or tried to get rid of dead bac... click here to read more

May 21st, 2013 – May is Lyme Disease Awareness Month From website: Protomyxzoa Rheumatica is a newly-discovered infectious organism that causes chronic disease. Protomyxzoa was discovered by Fry Laboratories of Scottsdale AZ. Although they have published no scientific papers on the organism, they offe... click here to read more

May 20th – May is Lyme Disease Awareness Month From Galaxy Diagnostics Laboratories website ( Galaxy Diagnostics offers the most sensitive test for the detection of active Bartonella infection. Our Bartonella ePCRTM (or EnrichmentPCRTM) test combines the patented BAPGM enrichment culture with a h... click here to read more

I Never Thought I Would
May 19th – May is Lyme Disease Awareness Month I Never Thought I Would Things I never thought I would never be doing five years ago: 1. eating almost all organic food 2. saying “no” with no guilt 3. considering coffee enemas 4. drinking green smoothies 5. trying to figure out computer software that used to be “... click here to read more

Measuring in Small Increments
May 17th – May is Lyme Disease Awareness Month Measuring in Small Increments I know I am healing when: 1. I can unload the entire dishwasher, not just the top rack 2. I don’t have to pay any late fees on our credit card bills – usually I forgot to pay the bills. I would think I had, but I hadn’t . . . 3. I mak... click here to read more

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