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This page chronicles my journey through Late Stage Chronic Lyme Disease. I was diagnosed many, many years after the initial onset, leaving me with a very long list of symptoms that I hope will eventually dissipate or even hopefully disappear as my treatment progresses.

Click here for Sharon's Bio

Sharon's Bio

For more than a decade, I suffered from numerous mysterious or rare maladies. I saw internists, gastroenterologists, endocrinologists, chiropractors, orthopedists, neurologists, neurosurgeons, pyschiatrists, phychologists, dermatologists, urologists, osteopaths, and then three rheumatologists. Some of them offered relief for my symptoms, but no one offered a cause.
In early 2009, I became almost bedridden with back and knee pain. Through the grace of God, four months later, I found the RIGHT doctor who diagnosed me with late stage chronic Lyme disease. I began treatment on October 16, 2009, one day after my dad's 80th birthday.
This is my perspective of my Lyme journey.

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Giving Up My Vanity
When we moved into this house 19 years ago, I was ecstatic to have an area between my bedroom and bath to put on make up. I had my very own vanity area, with a countertop, a chair, and a niche. I loved it. I put up my favorite artwork on the two walls. I used it every day. Then I got Lyme. This past Christmas, I a... click here to read more

Down the Rabbit Hole
It was a year ago this month that I began the final leg of my journey to a Lyme diagnosis. It originated last July with a “Lupus” diagnosis. As I walked out to my car, I called my sister, the nurse, to tell her the verdict and to find out more about this disease I had only vaguely heard of. A few days later, my uncle w... click here to read more

Relief and Renewed Hope
Relief and Renewed Hope Last week, I started a new medication for my Bartonella (co-infection of Lyme disease). At 2:45 the next morning, I woke up in extreme pain, feeling deep bone pain in my legs and right hip. By 5:30 am, the pain had exhausted me enough that I decided I wasn’t strong enough to handle Lyme treatment... click here to read more

Lyme Study Survey
Would you invest 15 minutes to help with Lyme? We need useful data for the study of Lyme and how it affects patients? We need your help! You CAN help by taking this survey! This survey is sent by the National Capital Lyme and Tick-borne Disease Association to gather information for a new paper, “The Human... click here to read more

Swirling Thoughts
It’s 11:30 pm and after 45 minutes of lying in bed with the lights out, I finally got up and decided that if I write everything down that is swirling in my head, maybe I can leave it on the paper and go back to bed and fall asleep quickly. Swirling -worrying about a long distance friend with Lyme who had a few great... click here to read more

In Honor of Aunt Betty
Why do I talk about Lyme so much? Am I obsessed with it? Do I think everyone I meet could have it? What is the deal with Sharon and Lyme? I talk about Lyme because it took me decades to get properly diagnosed and it could have been diagnosed with one test (the Western Blot). I don’t want others to go through what I... click here to read more

Get Properly Tested; Rule Lyme Out
A friend wrote me today asking for suggestions for a neurologist and a primary care physician who is a good diagnostician. “I'm experiencing some weird physical symptoms myself, and tested negative for Lyme at my internist's the other day. However, she wants me to see a neurologist for joint pain and persistent neuropath... click here to read more

Aids to Healing
I used to believe that when I got sick, I could go to the doctor, get a prescription, take a pill, and I would be healed of whatever ailment had inhabited my body. I used to believe a holistic approach to health and well-being was a nice thought, a possible avenue, but something that mostly appealed to those “hippies” o... click here to read more

Getting Out of Bed
I wrote this a couple of months ago. Thankfully, my symptoms have improved and getting out of bed is not to this degree . . . but in honor of all the Lymies who still experience this depth of pain and stiffness . . . . On school day mornings, if I had snoozed too long, Mom would gently open my door, come to the side of... click here to read more

Open Letter to Letterman & Stiller
Please see the following link for an open letter to David Letterman and Ben Stiller regarding their comments about Lyme Disease. http://www.lymedisease.org/news/touchedbylyme/387.html... click here to read more

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Lyme quote

Faith is the ability to offer our heart to the truth of what is happening, to see our experience as the embodiment of life's mystery, the present expression of possibility, the conduit connecting us to a bigger reality.

Sharon Salzberg, Faith: Deepening Your Own Deepest Experience

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Sharon's Bio